About

Elisa was born July 17, 2014 with a surprise: an extra chromosome and a diagnosis of down syndrome. She also had a major heart defect requiring open heart surgery.

When Elisa was born, we had no idea how many family members and friends would come together to support her. As she has grown, we have made new friends and our family has expanded to include her medical team, other special needs parents, friends of friends, and so many more. We have been overwhelmed by the sheer magnitude of people wanting to help us advocate for more Down syndrome funding, special programming and a more inclusive world.

What started as a Buddy Walk team became a much larger plan to change the world… Elisa’s Entourage hosted their first golf outing in September 2015 and raised more than $10,000 to benefit the Down Syndrome Association of the Valley. We are now a 501c(3) in order to have a bigger reach in the Down syndrome and special needs community.

Join Elisa’s Entourage! Be a part of her annual golf outing as a sponsor, volunteer or golfer. Sign up for our mailing list in order to be kept informed of upcoming events and advocacy efforts. Welcome to Team Elisa!